Lastly, a human donor valve was inserted into the pulmonary valve position. My 25 year old son was just diagnosed with BAV AR (3+). Having a congenital heart defect means you are born with a problem with the hearts structure. Its conceivable that an echocardiogram a week afterwards could be abnormal simply because of the race. Im keeping my heart rate below 150, 160 at most but just for short period of time. If untreated, it can lead to blocked blood flow. I am now down to seeing my doctors every 3 years or so and have been doing very well. Just a short info for whomever may read, I searched for Tims name and I found this page: All aorta is normal, valvula normal funkcion only sinus valsava 35-37mm. "I had many of them, but I thought, 'Nah.' Click to share on Twitter (Opens in new window), Click to share on Facebook (Opens in new window). Hello Dr. Creswell, The doc states that basketball is a contact sport in her medical books and we would need to consult with another doctor to possibly get approval. While she ended up being okay, she advised other women to be more cautious. My son is desperate to be able to play sports without any restrictions. As youve mentioned, sometimes it can be useful to visit a cardiologist who has an interest in athletes and their heart problems. The HAART 200 is an innovative device that helps in the repair of BAV, allowing patients to avoid aortic valve replacement. I am 18 years old . The lines are the edges of the valve leaflets that open and close to let blood through. I would like to know more about your recovery timeline since you are so much further out from surgery than I amfor instance; how long before you could do long rides again; when could you do tempo efforts; start high heart rate intervals; and finally race again? Also twice a week I try to do 40-minute workouts like planks, pushups and so on (with my bodyweight). Aortic valve stenosis: Your aortic valve narrows, reducing blood flow through it. This is such an interesting blog, I wish I had known of it sooner. Some information about myself: Im 28, 186 cm, 77 kg, max pulse 194, rest 50 bpm, live in Russia. Im 31 and 1 years ago i found im BAV with modrate AI. We also sign a school waiver every year. Guidelines suggest that athletes with BAV, normal size aorta, and no more than mild aortic regurgitation or stenosis can participate in all sports, without restriction.provided that they do not have an inherited connective tissue disorder like Marfanss syndrome. It sort of flutters open and shut. Left ventricle (LV diastolic diameter 54mm|58mm, LV diastolic volume 142ml|167ml, LV systolic volume 39ml|57ml, Ejection fraction 72%|65%); Thoughts. It has a male predominance and often occurs in multiple members of the same family, suggesting that it may have an autosomal dominant inheritance, perhaps with variable penetrance. When I had my valve replaced I was told that it would have a 20 year ish life but I think it should exceed that. A bicuspid aortic valve (BAV) is an aortic valve that has only two leaflets instead of three. They ruled out Marfans syndrome because his aorta was dilating. But neither of these procedures are durable for the long-term. Based on the information Ive provided, I would greatly appreciate your advice and opinion on the matter. Semilunar valves: The pulmonary valve and aortic valve. Not only the degree of aortic regurgitation, but also the degree of enlargement of the nearby aorta, should be taken into consideration when settling on limits for exercise. The use of a less invasive transcatheter therapy in this . Or, is it something that can wait until they get sports physicals in their teens? What activities can I do? Any words you have for us would be greatly appreciated. Theres a saying if you watch a group of kids running around, you would never know who had a heart defect unless they lifted their shirt. This list, which may shock you, includes Olympians, Athletes, Musicians and more, all with an invisible illness. Finally, many patients are able to return to their sports after successful operation. Since my initial post i decided to call another pediatric cardiology hospital in our state, University of Michigan Pediatric Cardiology. (Or do I just need to train even harder??). Thank you so much for your clear explanations. After an echo and an MRI with and without contrast, I found out that I have a BAV with mild aortic and pulmonic valve regurgitation. The doctor allows me to do moderate sport defined by her like not 20k each day; 20k per week should be fine. His last MRI showed a dilation of 4.4cm at his aorta root but his BAV is fine with very little leakage. It was her death that prompted me to get checked out. "I feel fantastic and have already been walking the streets of Cleveland enjoying your amazing statues. While i appreciate you are not my cardiologist and we`ve never met is there anything generic out there that i can look at to gain an idea. If so, how quickly? One doctor to told me just to control it and train as I like but the other one said that with those hearts parameters I will have only 1-2% to have operation in the future but if I will continue to do triathlon for sure I will have to have one. Im wondering if you can advise me. Review of the clinical records of 152 patients aged 20 years and older found to have a bicuspid aortic valve at autopsy revealed aortic stenosis in only 28 percent. I am a 55 years old male and have BAV. EKG and echocardiogram were done showing BAVD. Adam has been featured by the American Heart Association and Medical News Today. The singer co-founded the Womens Heart Alliance, which works to raise awareness and funds research to fight womens heart disease. Willie Moses Thank you so much for all of this insightful information. I was having chest pain and flew to Thailand to see what the issues were and they found I had GERD and Esophagitis. Normal LV diastolic function. Hey has been physically active with restrictions of no contact sports, and no isometric exercise. Is strength training that involves only using ones own body weight ok with mild BAV issues, or is all strength training out? transcatheter aortic valve replacement (TAVR), Mick Jagger's Heart Valve Surgery: Top 5 Facts. Perhaps your primary care doctor or cardiologist could help you find another specialist in your area who could help with thatlook over all of the pertinent information and share an opinion about whats safe. In my practice, we often do such second opinions (about all sorts of issues) and I have found that athlete patients usually value the information that comes from such visits. September 13, 2017 1:00 PM. It sounds like youre off to a good start with your recovery. Will surgery mean I can do more or less training? My mother passed away last May following her second AVR. His whirlwind romance with Katherine Schwarzenegger has resulted in a rather large ring on her finger. Diagnosed at 5 with BAV, checked yearly, and okayed to play soccer. My question is if my weight&lack of training or my BAV is the cause of difficulty in running. Thats about as specific as he got. Others won't have symptoms until adulthood, if ever. Typically, the aortic valve has three cusps (tricuspid aortic valve), but some people are born with an aortic valve that has two cusps (bicuspid aortic valve). Your web site and the links have much good information. The increased stroke volume and cardiac output may cause . His cardiologist said, i am sure he can play a full game with new issues but I have to go with new guidelines and indirectly left it up to me to make the decision which moved him to mild /moderate and put right at the Borderline. From afar, I dont have much to add. Im a 29yo CrossFit addicted man who just found out I have BAV while applying for the defence force here in Australia. Latifah has taken on her mom's caregiving duties, along with relatives and a nurse, whenever she is on the east coast. I found myself in emergency surgery 12 months ago with 50% leakage, an enlarged heart and an ejection fraction of 30. Can you direct us to ANY research on the effect of endurance sports on AVR patients? My son will be 16 next month. I would like nothing more than to have this repaired so I can return to my lifestyle, I cant understand why I cant have it fixed as it is my choice to have surgery. Again, thank you and bless you for taking the time to talk with us here! ), What do you think? Many endurance athletes are able to return to their sports after operation for BAV. The important considerations in athletes with BAV are the degree of regurgitation of the valve and the degree of enlargement of the aorta. The aortic valve is between the left lower heart chamber and the body's main artery, called the aorta. 2023 Cond Nast. There has been a slight increase in the measurements over the last several years, but I am still below the threshold which would require surgical intervention. Want to get a head start on your Oscar predictions? Jeff. Less than one month ago Schwarzenegger was (virtually) hosting the Austrian World Summit of the Schwarzenegger Climate Initiative, which introduced speakers like Prince Charles, Jane Goodall, and Pakistani Prime Minister Imran Khan. Always best to heed the advice of your doctor(s) who will be in the best position to offer advice about safe forms of exercise. Notify me of follow-up comments by email. Many heart conditions can be controlled or repaired once theyre diagnosed. They are also predisposed to enlargement of the ascending aorta, the large blood vessel that carries blood flow away from the heart. The issue of how much (& what types of) exercise after surgery is difficult because we dont have good studies (& evidence) upon which to base recommendations. This is an unfortunate situation for the athlete patient because the consensus guidelines do not yet recommend operation, yet advise against strenuous sports activities. In addition to running, I also perform moderate to high intensity resistance (weight) training 5-6 times per week. Thank you for your ideas and I apologize for my gramma errors (English is not my first language). He left it pretty vague. I realize that appointment availability for medical specialistsin your case, the pediatric cardiologistcan be tight. They are located between the atria and corresponding ventricle. This can cause the valve to malfunction and prevent blood from flowing correctly from the . The doctor said she would see if she could talk about his case with the surgical panel but she said even if he did have surgery he couldnt have a career in sports??? We just saw them in January. Check out Anthony DiLemmes blog, Anthonys Heart Valve Replacement Saga. (Yes, I have been going for regular check-up since in was about 7 years old. I am mostly a runner, 4 times a week, with 10 21 km races. Im not surprised that youve received a conservative recommendation about exercise. enlarged LV = 350ml Could you express your opinion on this issue? I appreciate your response, thank you for taking the time to write me back. I had a David Tirone Operation a couple of weeks ago to repair a BAV with aortic dilatation (49mm), and a small leakage. BAV is the most common cause of heart disease present at birth and affects approximately 1.3% of adults. Hannah Yona Fraint, M.D. Ive starting going to the gym again and doing cardio with weights to tone up. Is that far fetched? Assuming that 2% of the US population has bicuspid aortic valve disease, that is 6,278,281 people. I just need to know if these sports are a possibility (im pretty sure football is a no given its contact nature). Fox News anchor Bret Baier has a . I realise that I will eventually need the valve replaced again and just hope that things go as well next time. A bicuspid aortic valve is a congenital heart defect that affects the one-way valve between your heart and your aorta, known as the aortic valve. Would this have any affect on any of the results of the tests I have done (Echo, EKG, Chest Xray)? I too am looking for information on effects to performance since I am a Masters racing cyclist with 25 years of racing/riding long events. Im a 33 yro female, diagnosed with BAV. I cant imagine life without activity, but Im not fool to risk my life, not any more anyway :). Abstract. Thanks for the very insightful post, and for taking the time to reply to everyone here. The Ross procedure borrows your sons pulmonary valve and uses it to replace his aortic valve and aorta. My AVG HR on a daily basis is between 61-64 (that includes a workout where it exceeds 150 at times), I have no intentions of racing this marathon, simply crossing the FINISH line, and my heart rate will not exceed 150 I will walk when/if necessary. I am big for my age . 24 HOUR GYM There are a multitude of patient-specific circumstances that must be considered when deciding if and when operation is needed. Ive seen several cardiologist and they are divided in recommendations. Follow up for development of these functional lesions is indicated. I would prefer not to stop. Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. I dont know all of the important details. Frequency of congenitally bicuspid aortic valves in patients 80 years of age undergoing aortic valve replacement for aortic stenosis (with or without aortic regurgitation) and implications for transcatheter aortic valve implantation.Am J Cardiol. I am wondering because I know that weighlifting with bav isnt so good I feel terrible because i lov weightlifting and I have build a body that is so difficult for a 18 years old. She said it could still be 6 months to a year just depending on if there are any more changes to this next echo. I met an old guy once after a run and he described me very well his running experience; he said when I accelerate, Im the only one to know. What does heavy weights mean? A 2019 report suggests that bicuspid aortic valve disease is the most common congenital heart valve problem, affecting between 0.5 and 2 percent of the general population. This was caused by an aneurysm in the ascending aorta (root) that measured over 6 centimeters). We were to see them in 3 months. I dont know about the relative effectiveness of various ARBs used for this purpose. The pertinent questions for your cardiologist is whether there is any stenosis (narrowing) or regurgitation (leakage) of the aortic valve and whether the size (diameter) of the nearby aorta is normal. I have been feeling better than before the surgery and I feel with better condition on the trails. The typical symptoms are fatigue or shortness of breath, particularly with exertion. I wouldnt put you in the position of giving me your opinion in a public in forum but just let me know if based on the following, you think Im crazy or not. Stress echo revealed hypercontractile with normal response in all LV segments, no LV cavitary dialiation. We expect the current generation tissue valve to last at least 12-15 years before problems. I had an echo because of a scuba diving accident and was discovered to have a BAV (no PFO). Im a 30 yr old male, training 5 times a week rowing and strength training. They are located between the ventricles and their corresponding artery, and . I used to be very muscular prior surgery and 3 mounts ago I started with 5 km runs, push ups and pull ups 3 days a week, slowly progressing. From afar, its hard to know what might be responsible for your symptoms. Should I increase amount of weight? So, my question then is really, what should I look out for? I see in this blog that Dr. C noted: Compared to our own native valve, all of the available prosthetic substitutes have a small degree of aortic stenosis built in, unfortunately. I have 5 children, so I dont want to drop dead and leave my poor wife with them all to look after on her own. Is this a possible explanation? Diagnosed last year while looking at something else. Thanks very much. My 28, got a BAV with mild stenosis and a aortic root measuring 40mm. This year he was told he couldnt do heavy lifting but all other sports are still ok. My son seems to sprain his ankles or have other injuries often that last longer than others kids, I also played sports and had injuries but they never lasted as long as his do. However, many people will develop complications from their BAV and may need surgery in their lifetimeeither to repair or replace the aortic valve, the thoracic aorta or both. Arrhythmias may sometimes manifest many years after surgical repair of congenital heart defects. Do you recommend any particular diet, exercise, vitamins,etc.? Ive done so much research and there are lots of young people who have went on to play sports and lead normal lifes. In March 2018 he underwent emergency surgery to have this replacement valve replaced. Arnold Schwarzenegger (The Governator) - Heart Valve Replacement. No stenosis or regurgitation, aorta 27 mm at the time. We live at 6,500 ft (elevation) so Im not sure if its affecting my blood pressure when doing normal things. Bicuspid aortic valve (BAV) is a genetic condition that causes the aortic valve to have two leaflets instead of three. We have contacted the Cleveland Clinic to learn more and will report back soon. My son at 11 months was diagnosed with BAV. Dear Dr Creswell you seem to be such a kind cardiac surgeon to make yourself available in answering questions. Aortic Stenosis To help correct the regurgitation, the cusps of the patients valve leaflets can be tailored, with the valve leaflets left in place. By clicking Accept All Cookies, you agree to the storing of cookies on your device to enhance site navigation, analyze site usage, and assist in our marketing efforts. While the defective valve may be easy to see, the defect also causes changes in the tissues of the aorta and the heart. To save nice heart the best would be doing nothing (! What a great resource! Dr. Creswell Sometimes my cardiologist says there is minimal change and he thinks my aorta had slightly enlarged by 1-2mm. these conditions occur mostly during my exercises at the gym and Im left very lightheaded and shortness of breathe. that suffer from heart valve disease along with a link to the reference story about their heart valve disease and their Twitter handle can be found below: ), the famous American television anchor, suffers from, ), the Olympic Gold Medalist (Soccer) suffered from, ), a comedian and broadcaster, suffers from a. And of course the problem occurs in everyday, recreational athletes, too. 3 In the most common type (type 1), there is a fusion line between the left and right coronary cusps, which extends a variable distance from the commissure (the point of attachment of the .
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